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Friday, March 10, 2017

Fran Seranade of Creations for Parkinsons


By Deaflegacy

"Parkinson's is a progressive neurological disease." said Barbie Alchemi. "My Father died with it and my Mother has it now. But I have learned that although my Mom has  Parkinson's, it does not have her!"  Her mom would be Fran Seranade.  They have a Second Life Parkinson's Support Group that has been meeting for six years.  The members have all learned that they are still themselves, their own personalities, and can express their creativity and emotions the same as always.

"Yes my Mom just turned 90 'Years Young' as she likes to say (laughter)," spoke Barbie when she was asked about Fran's recent birthday party.  "She thinks of Second Life as the 'Fountain of Youth'.  Inside she feels very young, yet her physical body is getting old.  The wonderful thing about Second Life is that here she can feel and experience life as young as she looks."

Barbie went on to say that Fran had two birthday parties.  The first party was seven hours of live music at their CP Swing 40's Era Dance Ballroom.  Over 200 people dropped by to share their love with Fran. They have raised 180,000 Lindens for the Michael J. Fox Foundation for Parkinson's Research that day.  "That is $700 US Dollars!" said Barbie.  Barbie also added that Fran loves to dance at their new CP Swing Ballroom because they play the music of her teen years, which brings back fond memories for her.

"She was quite the dancer in her day. She and her partner could clear the floor." said Barbie.  "The second Birthday Party was even more amazing in some ways."

Barbie explained that six core members of their SL Parkinson's Support Group have become so close after meeting together every week for six years that they all decided to fly from all over the country to be together with Fran on her real-life birthday.

"It was the most wonderful experience," said Barbie, "We have all grown to love each other so dearly, and when we all met in person, it was as if we had known each other forever.  Second Life has brought a depth and meaning to our lives that we all treasure."

They have 30 members in the Parkinson's Support Group, but not everyone comes all the time.  They usually have around eight members who are there every single week, unless something in real-life prevents them from coming. It is at a perfect size so everyone gets a chance to share as well.

"Mom started the support group in Second Life, and asked Tredi (Dr Donna Davis) to facilitate each week. She presents a meaningful topic that we discuss." said Barbie.

According to Barbie, they have raised almost $10 million Lindens since they started, and that is $40,0000 US Dollars for Parkinson's Research. She also shared some information about the Parkinson's Support Group.

The information is below:

THE STORY OF CREATIONS PARK ~ Grown with Love
Our RL Dad died with Parkinson's and our mother, Fran Seranade, has it now. To quote her "I may have Parkinson's, but it does not have me." At 90 "years young", she is active in Second Life and is thrilled to see herself running and dancing again. We have built everything on Creations Park with LOVE. We hope you can feel that love while you are enjoying yourself here.

OUR MISSION
It is our Creations Team Mission to use our love and talents to make a difference in both the RL and SL worlds. We create experiences to stimulate Hearts, Minds, Bodies and Souls. It is our goal to help find a cure for Parkinson's which will then lead to a cure for all neurological diseases. Come share your love with us and help us find the cure!

***VIDEO***
PLEASE be sure to watch our award winning video about the benefits of SL for our RL Mom who is 90 "years young" and has Parkinson's. Ebbe Linden (CEO of Linden Labs) has called this one of the most important video ever made
[13:41] Barbie Alchemi:  about Second Life! This will inspire and touch your heart!
The Drax File: World Makers- Episode 13
 http://www.youtube.com/watch?v=nyiiWxNguGo&feature=youtu.be

DONATIONS
100% of all donations go to Team Fox for The Michael J Fox Foundation for Parkinson's Research. We believe it is important for you to know how your donations are being spent. Our family covers all tier and expenses. All Donations are directly wired from Linden Labs to the Foundation. The MJFF has the top rating from Charity Navagators and has the lowest overhead of any major charity, giving 89% directly to the most promising research!

"It is not our challenges that define us, our actions do." - Michael J Fox

"If someone would like to join our Parkinson's Support Group, then need to contact me for an invitation to the group," Barbie told me.

Barbie was invited to NYC to meet Michael J. Fox in person as a result of the important work they do on Second Life to help find a cure for Parkinson's.

The SLurl for the main landing spot is: Creations Park (90,164,36)

Deaflegacy

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